杜氏肌营养不良患儿生存质量研究现状

刘洪欣 综述 吴士文 审校

武警医学 ›› 2016, Vol. 27 ›› Issue (7) : 743-745.

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武警医学 ›› 2016, Vol. 27 ›› Issue (7) : 743-745.
综述

杜氏肌营养不良患儿生存质量研究现状

  • 刘洪欣 综述 吴士文 审校
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摘要

随着疾病谱的改变和医学的快速发展,健康观念和医学模式随之改变,健康不再只是没有疾病,疾病的治疗也很难用单纯的治愈率、生存率进行评价,需要一个符合生物心理社会医学模式的综合评价指标;能综合评价人的生理、心理和社会功能状态及疾病的影响的指标——生存质量(quality of life),于20世纪80年代初期开始在医学领域掀起研究热潮[1]。何谓生存质量,1993年世界卫生组织(WHO) 给生存质量下的定义为:生存质量是不同文化价值体系中的个体对于他们的目标、期望、标准,以及所关心的事情和有关生存状况的体验[2]。生存质量由与健康相关的因素(如身体,功能,情绪,精神健康)和非健康相关因素(如工作,家庭,朋友及其他生活情形)共同决定,健康相关生存质量主要是从医疗角度出发,致力于说明与疾病或治疗有关或受其影响的自我感知的幸福感[3]

关键词

Duchenne型肌营养不良 / 生存质量 / 健康相关生存质量 / 量表

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刘洪欣 综述 吴士文 审校. 杜氏肌营养不良患儿生存质量研究现状[J]. 武警医学. 2016, 27(7): 743-745
中图分类号: R746.2   

参考文献

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